Donate Toggle Menu
Photo of Kenneth Winters on top of Mt Wachusett

This is a guest post by Kenneth G. Winters, 70, a retired US Navy Chaplain from Massachusetts.

I was diagnosed with stage IV kidney cancer in April 2018. The cancer had also spread to my bones. My oncologist, Dr. Kriti Mittal, shared gently with me, “I have to tell you that you are a very sick man.” Suffice it to say I was in pretty bad condition.

Due to severe pain, I was hospitalized and soon underwent much-needed major back surgery. I was fortunate to receive timely care; without it, I would likely have become paraplegic.

Afterwards, I went through a full series of radiation treatments, which had considerable impact, stopping the spread of cancer in the bone and starting some degree of progress.

“I hope my story strikes a chord in someone’s heart and provides some encouragement and hope to those walking through similar journeys.”

During this hospitalization, I was in tremendous pain. I called my wife Connie and my primary care physician, who came to the medical center to guide a meeting of the medical care team that was helping me. I specifically remember her saying: “Everyone, we are going to listen as Ken shares about his pain.”

Thanks to her intervention, I was able to receive needed pain medication and a self-injection button for the toughest moments.

During my hospital stay, Dr. Mittal visited and shared the long-term treatment plan with my wife and me. Since then, she has guided me through ongoing immunotherapy. It is working beyond our best hopes. The tumor on my left kidney has reduced in size and is now described as “cyst-like”.

In addition, after a considerable journey, I have no skeletal pain. My palliative care provider was an essential part of weaning me off the pain relief medicine and now I take Tylenol a few times a week, usually after exercise. When I came home in May 2018. I was using a walker, barely able to get around and climb stairs. With the help of God and the incredible medical personnel, I was able to begin walking significant distances by July. That September, I completed all five miles of the UMass Cancer Walk & Run.

Faith in God has been an incredible strength and comfort to me, my wife of 47+ years, and our family. Our church family provide tangible support, visits, meals, and cards, along with essential prayer support. By June 2018, I was back leading a Praise Team at the morning worship service. Instead of standing, I was seated on a stool, but singing and playing guitar to God’s glory. I believe God has some more for me to do here on planet Earth.

I have lost many dear friends to illnesses, car crashes, and, specifically, cancer. I know my faith does not guarantee healing. Certainly, without the incredible care at the Cancer Center at UMass, I would probably have left this life behind in the summer of 2018. That didn’t scare me then and doesn’t scare me now, because I am a committed Christian and trust that Jesus’s promises of eternal life with him are true. It is all a gift of His grace. Still, for me, as for all of you, this life matters. God has given me the gift of life. I am thankful for the combined therapies of prayer, medicine, and exercise for the greatly increased quality and length of life I am experiencing now. Dr. Mittal and others have provided me with essential treatment and medical care. As a result of these things, I have been blessed with extended time with my beloved wife, my daughters, their spouses, and my grandson.

All is not perfect. My sleep is unpredictable, which saps me of the energy I need. I am fortunate or blessed (or both) that I do not have any extreme reactions or side effects from the immunotherapy regimen. I usually feel weaker and achier for 1-2 days after the treatment, but largely can go about my normal routine.

As my condition improved, I began working hard to improve my physical conditioning. I’m a retired US Navy Chaplain. I served two tours with the Marine Corps. Physical conditioning has always been important to me.

At first, I was just walking – one mile, then two miles, then three and so on. Swimming has worked wonders for my overall fitness and eliminated aches and pains. That September, Dr. Mittal gave me permission to try some easy kayaking, which is my favorite sport. I just cannot LIFT the kayak. Before cancer, I used to do some pretty intense mountain and road biking, but now I stay on the main bike trails. I have had to accept the fact that I will not be going as fast or as far as I used to. One crash or fall would likely shatter weakened bones and mean a long period of rehabilitation. However, I plan to keep doing what I can do for as long as I can and hope this continues to reap dividends in my overall health.

Perhaps more important is the fact that I can engage in a number of daily activities and chores – groceries, riding my lawn tractor, edge the grass, rake leaves. I was able to help my wife plant our sizeable vegetable garden.

I listen to my body and to my wife to make sure I am not overdoing things. We have hired younger folks to clean up after the New England snowstorms. At 70, that’s probably a good idea even if I was not dealing with cancer. I’m also thankful have the strength and energy to be involved in my church.

I wrote this at the suggestion of Dr. Mittal. From our first meeting, her caring nature and professionalism were on full display. She encouraged me to share my journey with kidney cancer – that it might resonate with and perhaps encourage someone who is dealing with advanced renal cancer.

I hope my story strikes a chord in someone’s heart and provides some encouragement and hope to those walking through similar journeys. It would have been easy to give up in the spring and early summer of 2018. Instead, with the help of my doctors and family, I did not give up and continue to make progress. I have enjoyed a longer life and a much higher quality of life than I would have thought possible when diagnosed almost three years

Life is meant to be lived, not just survived. I am thankful every day to each person that has helped me to continuing living through cancer, not just survive.

Recent Blog Posts

9 thoughts on ““Life is meant to be lived, not just survived.””

  1. Thank you for sharing! I also was diagnosed with kidney cancer in spring 2018 – had already spread to bones. Fortunately, I have so far not had extreme pain or back surgery – but have had much radiation and medication. Unfortunately, immunotherapy has not worked for me. Now I’m on a daily dose of a targeted molecular therapy which so far has kept the cancer at bay.
    I just turned 71 and share your philosophy – keep as active as possible. So thankful for medical team, family, and friends. So thankful for my long and excellent life.
    Best of luck to you.

  2. My dad is battling kidney cancer. Today was a hard day. He is fighting. This post gives me hope. Thank you for sharing. Prayers for you and stay well.

  3. Thank you for sharing your story. I cannot believe the similarities that I have with your story. I too was diagnosed with Stage IV kidney cancer in August 2018 at the age of 52. The Primary tumour being in my right kidney. It had also spread to my spine. I had major spinal surgery to keep me mobile. I have a lot of metal rods holding my spine together. The pain was and still is at times difficult to bear. I take great strength from your story. I am currently on a targeted therapy treatment and am waiting on a scan to see if I am responding. Stay strong and keep active. Sending my best wishes to you.

    1. Hi Elizabeth. I know everyone’s walk through cancer is unique. I never imagined I would still be here 3 years after my diagnosis, but I also know things can change quickly. I am praying for your Dad, for you and all who love him. Sending a virtual hug your way.

  4. Jenny P. Thanks so much for sharing your thoughts and situation. We are all unique and face unique challenges. But, when I had my chypoplasty there were no guarantees that I wouldn’t come out of it with some degree of paralysis. I do not have the metal rods that you had inserted, but there was plenty of cancer in a number of my vertebrae. It is the immunotherapy that has continued to keep my symptoms under control, and I thank God for this valuable addition to the physician’s toolbox, as Dr. Mittal calls it.

  5. These are all stories of hope! I, too, was diagnosed w/ stage 4 renal cell carcinoma in August of 1990 @ age 36. A long story short I had 5 major surgeries & finally immunotherapy in 1999 which had just been approved called interleukin 2 & interferon. I am now 67 & living a normal life. Thank God & the doctors @ City of Hope here in California.

  6. Thank you for sharing your story. I too was diagnosed with Stage 4 renal cell carcinoma in 2017. I’m now 69 and living life one day at a time and thanking God for His continued healing. God bless you.

  7. I have been fighting Stage IV Renal Cell Carcinoma for the last 7 years. I lost my left kidney, left ureter, gallbladder, and a chunk of my liver where it is still. I am also diabetic and a Covid survivor. The prayers of friends keep me alive. I am also getting stronger, a little bit at a time. VA Miami is keeping me alive. I take Sunitinib for two weeks on and one week off. It’s the fifth medication that I take and so far it has no side effects. You can live with cancer, it is not fun, but I enjoy my six grandchildren and friends. God bless you all.

  8. Thanks for sharing. I am going through a similar journey and currently hit a few “pot holes” on my survival road trying to get back to a state of thriving. Lately these setbacks have rattled my mental state but getting cleared to resume activities and reading stories such as yours are helping get me back on track.

Leave a Reply

Your email address will not be published. Required fields are marked *