Kidney Cancer Unfiltered: Advocacy and Advancements with Katie Coleman & Dr. Pavlos Msaouel
In season 2, episode 9 of Kidney Cancer Unfiltered, host Annamaria Scaccia talked with Katie Coleman, a stage 4 kidney cancer survivor, and Dr. Pavlos Msaouel, a physician-scientist at MD Anderson Cancer Center. Together, they shared insights into navigating a rare cancer diagnosis, the challenges of advocating for oneself in the medical system, and the importance of research for better patient outcomes.
Katie discussed her delayed diagnosis, the emotional toll it took, and how she overcame her hesitancy to advocate for her care. She shared how becoming informed transformed her into a champion for patient advocacy, helping other rare cancer patients connect to critical research opportunities. Dr. Msaouel explained the complexities of treating rare cancers, emphasizing the role of collaboration and persistent research in achieving better outcomes, especially in renal medullary carcinoma (RMC) and other rare tumors.
Katie’s memoir, Too Young for Cancer, was released on November 12th, and is now available for purchase. All proceeds support rare cancer research.
Follow Katie:
- Website: katiekickscancer.com
- Instagram & TikTok: @katiekickscancer
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For those seeking support and further resources, the Kidney Cancer Association offers:
- A Patient Navigator Program to guide patients through their journey
- Various support groups, including a Facebook support group, where patients and their families can find community and understanding.
- Additionally, the KCA blog is an excellent place to connect with others and stay informed.