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New campaign to raise awareness about connection between sickle cell trait and deadly form of kidney cancer. The Kidney Cancer Association (KCA) and the Sickle Cell Disease Association of America, Inc. (SCDAA) are partnering to launch the “KNOW & TELL” initiative today to raise awareness about sickle cell trait (SCT) and its link to a rare, aggressive type of kidney…

We rounded up a few research highlights from the 2021 meeting of the American Society of Clinical Oncology (ASCO). https://www.youtube.com/watch?v=x1W9jDlO7cU Dr. Toni Choueiri discussed the results of the KEYNOTE-564 trial. A “quantum leap” in post-nephrectomy treatment Treatment with the immunotherapy pembrolizumab (Keytruda) after nephrectomy significantly reduced the risk of disease recurrence or death compared with treatment with placebo in people…

Participating in a clinical trial often requires learning a whole new set of terminology. During the KCA's latest Facebook Live event, Medical Director Sallie McAdoo, MS, CGC, moderated a conversation with survivor and patient advocate Peggy Zuckerman and Meghara Walsh, RN, BSN, of the Dana-Farber Cancer Institute, about the complex language that often accompanies clinical trial enrollment. To help remember…

This is a guest post by Ben Lundin, a a member of the Kidney Cancer Association’s Patient & Caregiver Advisory Council. As we approach World Kidney Cancer Day on June 17th, some of you are sure to begin planning for the Kidney Cancer Association's 76K Challenge. In January of this year, I raised more than $8,700 across 120 unique donations…

Over 76,000 people will be diagnosed with kidney cancer this year, according to the American Cancer Society. Together, we can support kidney cancer research that changes lives. The KCA is raising $76,000 in June for those who will receive a diagnosis this year. In honor of World Kidney Cancer Day on June 17, we're matching donations dollar-for-dollar. Meaning, you can…

My stomach, swollen and on fire. The incisions, healing, burn. Too much pressure, and it felt like they will rip apart. My belly, round, in a perpetual state of fullness, pregnant with remnants of fear and freedom. My stomach is forever changed. It bears old scars, from teenage years and coming-of-age depression. But now five new scars cast wide shadows…

In their new book, Digital Health: Understanding the Benefit-Risk Patient-Provider Framework, Eric Perakslis and Martin Stanley define digital health and discuss its potential to improve patient care in the face of emerging risks, drawing on their combined expertise in data science, cybersecurity, and decades of hospital, policy, and federal regulatory experience. Perakslis is Chief Science Officer at the Duke Clinical…

Vineeta Hiranandani is a member of the Kidney Cancer Association’s Patient & Caregiver Advisory Council. What motivated you to get involved with the KCA? When my brother got sick with renal cell carcinoma, I learned first-hand the challenges that patients and caregivers go through from when you first get that diagnosis throughout your journey. Your world completely changes and you…

Welcome to our new series where we take a look at what’s happening in kidney cancer each month! From treatments and clinical trials to genetic testing and government regulations, the KCA’s Medical Director, Sallie McAdoo, MS, CGC, will show you what’s new and why it matters. This month, I’m excited to share a flurry of activity from multiple groups that…

CAMBRIDGE, Mass.--(BUSINESS WIRE)--Secure AI Labs (SAIL), the healthcare data security company offering a secure, easy-to-manage, and auditable solution to track and trace the use of patient data in collaborative research, is pleased to announce its partnership with the Kidney Cancer Association (KCA) to provide federated learning and data security technologies for the KCA’s Data Federation. The KCA will leverage SAIL’s…