Susan Hill is a caregiver for her husband, Bruce, and a member of the KCA’s Patient and Caregiver Advisory Council (The PCAC). The PCAC serves as the voice of the patient and provides the vital link between the patient community and the KCA.
We spoke to Susan about her involvement with the KCA.
How long have you been working with the KCA and what motivated you to get involved?
I have been involved with the KCA Patient & Caregiver Advisory Council for approximately two months. I’ve had numerous kidney cancer caregivers and family members reach out to me via my Instagram posts about our kidney cancer journey, so it just made sense to get involved on a more organized level.
How do you hope to see the KCA grow?
I hope to see the KCA become an informative resource for and means of connection between kidney cancer patients, caregivers, as well as family and friends.
What are you excited to bring to the organization?
My husband Bruce and I have been on our kidney cancer journey for almost three years. We’ve experienced symptoms, doctor visits, a multitude of tests, scans, and biopsies (and the scanxiety that accompanies them), cancer diagnosis, a radical nephrectomy, immunotherapy treatments (including autoimmune hepatitis as a side effect), and most importantly a response to immunotherapy. Through it all we have learned to live in the present and maintain a positive attitude. We are always willing to help others with their journey and can do so via the KCA.
What is your favorite travel destination and why?
One of my favorite sayings is, “Explore more.” The beach was always my favorite destination (especially Cape Cod), but then we started taking family vacations to the southwestern US. After hiking around the likes of Zion, Bryce Canyon, Grand Canyon, Joshua Tree, and Saguaro National Parks, I’m ready to explore them all.
What do you like to do in your free time?
Bruce and I like to go hiking in our spare time. We are fortunate to live in New York’s Hudson Valley where we have many beautiful places to explore.