John Ferrell, a member of the KCA’s Patient & Caregiver Advisory Council, spoke about his work as an advocate for kidney cancer and his passion for traveling.
I have been involved with the KCA since the Fall of 2019, when we joined forces to advocate for Kidney Cancer funding on Capitol Hill. Since my diagnosis in 2010, I have been involved with several organizations to raise funds for Kidney Cancer research, bring awareness to the disease and help other patients that may be going through the same experience I am. This has helped me deal with my own diagnosis and struggles along the way.
I would like to see KCA continue to grow into a patient and research-focused organization like they are now. Gretchen [E. Vaughan, KCA’s CEO and President,] has brought great leadership to the KCA, which has motivated me to get more involved as a patient advocate. Incorporating the voice of the patient into an organization like the KCA will help bring a level of personalization many organizations do not have.
I am excited to bring my own personal experience with kidney cancer into the organization, as well as my experience on the research side. All of my treatments have been clinical trials which I strongly believe is the reason why I am in remission from stage IV kidney cancer today.
I have many but currently it is Telluride, Colorado. It is a year-round destination with snow sports in the winter and hiking and other outdoor activities the rest of the time. During the summer, there are music festivals just about every month!
I like to travel, spend quality time with my family and go see live music. Hoping we can get back to the live music part in 2022!