Just Diagnosed Toolkit
Step 1: Learn the Basics
Step 2: Find a Specialist
Step 3: Treatments
Step 4: Side Effects
Step 5: Get Support
Life with kidney cancer
Patient Navigator Program
Online Support Community
Virtual Patient Symposium
We're here to help.
KCA Patient Navigator Program
Ways to Give
Common Questions About Kidney Cancer
Watch over 50 videos of experts discussing some of the most common questions from patients and families about kidney cancer.
Expand any topic below to learn more.
Kidney Cancer Basics
What is kidney cancer?
What causes kidney cancer?
What are the symptoms of kidney cancer?
Can kidney cancer be cured?
If I have kidney cancer, do I have to have my kidney removed?
Is there a connection between von Hippel-Lindau syndrome & kidney cancer?
What qualities should I look for in a surgeon/oncologist?
Should I get genetic testing for kidney cancer? When?
How will I know if my cancer returns?
How can I prevent my cancer from recurring?
What is hospice care and when should I explore it?
What happens when a patient transitions to hospice care?
Is it possible to prevent kidney cancer? How?
Are there causes of kidney cancer that can be controlled?
What should I look for and ask when choosing the best doctor for my care?
How do you make a kidney cancer diagnosis?
What should you do when you receive a kidney cancer diagnosis?
What are the first steps for someone diagnosed at stage I, II, III, IV, or metastatic kidney cancer?
What’s the difference between cancer stage and Fuhrman grade?
Can I get a second opinion for my diagnosis? Will my doctor be offended?
How do kidney cancer subtypes influence treatment?
What types of doctors will you see if you are diagnosed with kidney cancer?
What should I ask my doctor before treatment?
Can I get a second opinion about my treatment plan?
What treatment options do people with rare types of kidney cancer have?
What do I do if my doctor and I disagree about treatment?
Why are treatment options sometimes different in different countries?
What are the short and long term effects of kidney cancer treatment?
What are the long term effects of repeated CT scans?
Do you treat cancer in the kidney differently from metastatic sites?
What should a patient do if they don’t understand what their doctor is telling them?
What is the difference between adjuvant and neoadjuvant therapy?
What is the difference between systemic therapy and local therapy in kidney cancer?
What should you ask your doctor before surgery?
What should you expect before surgery and how can you prepare?
What should you expect after surgery and how can you prepare?
Can you get a second opinion about a surgery? Will your surgeon be offended?
What’s the best way to care for myself after nephrectomy? What activities would be limited?
How long would a patient typically have to stay in the hospital?
Do patients need special equipment at home after surgery?
What is targeted therapy?
How do you talk to your doctor about finding and joining a clinical trial?
When should you talk to your doctor about clinical trials?
What should you think about when choosing first-line kidney cancer treatment?
Side Effect Management
What kind of side effects can patients expect from kidney cancer treatment?
How can patients best manage side effects from treatment?
What can patients do to mitigate side effects from kidney cancer treatment?
How do you tell your doctor that your side effects are too much to handle?
Can you exercise when you have kidney cancer?
Can you exercise when you are getting treated for kidney cancer?
How can kidney cancer treatment affect daily activities?
What kinds of supportive resources do hospitals have for patients dealing with cancer?
How can kidney cancer affect my relationships?
What kind of mental health support do kidney cancer patients need?
How to manage anxiety and depression that may be associated with kidney cancer diagnosis/treatment?
I worry about my cancer all the time. How can I manage my anxiety?
Where can patients connect with others who have gone through a similar experience?
Small Renal Masses
What is a small renal mass?
What is active surveillance, and who would it be appropriate for?
What is the suggested approach for a benign small renal mass?
Can a small renal mass spread to other parts of the body?
If a small renal mass is malignant, what is the suggested approach?
What’s on the horizon?
What’s on the horizon in kidney cancer research?
What does the future of kidney cancer care and treatment look like?
What is exciting in kidney cancer research?
What is the next big thing in kidney cancer care and treatment?
What kind of developments in kidney cancer care and treatment can we expect in the next few years?